Report on persons with albinism and the right to education

Written by Caren Thomas and Daphné Rein.

This report is a Submission to the Office of the High Commissioner for Human Rights on persons with albinism and the right to education in France.

Data on persons with albinism

Please provide statistics and information on persons with albinism in your country.

According to the Genesis NGO in France, there are 5,700 persons with albinism in France, including 4,500 persons with oculocutaneous albinism and 1,200 persons with ocular albinism¹. 2% of the French population carries the gene, which means that 1,200,000 persons have the gene². These numbers are from 2014 and are the only statistics and data available in France. Otherwise, there are no statistics from national sources.

Please provide any data on persons with albinism in the education sector, be it primary, secondary, or tertiary level.

As of yet, there is no data regarding persons with albinism in the education sectors in France. Genespoir has ascertained that 80 babies are born each year with albinism in France¹. Therefore, we can deduce that each year, 80 persons join the education sector in France.

You can download the full report in this link.

5A_Report_on_persons_with_albinism_and_the_right_to_education

---

References

1 Genespoir. “L’albinisme : une maladie rare.” Dossier de Presse. October 2014. www.genespoir.org. p.4 <https://archive.wikiwix.com/cache/index2.php?url=http%3A%2F%2Fwww.genespoir.org%2Fdocuments%2FA01b_Documentation%2FDossier-Presse_2014.pdf%2Findex.html#federation=archive.wikiwix.com&tab=url >

2 Genespoir. “L’albinisme : une maladie rare.” Dossier de Presse. October 2014. www.genespoir.org. p.4

3 Genespoir. “L’albinisme : une maladie rare.” Dossier de Presse. October 2014. www.genespoir.org. p.4